It has been a pleasure to coordinate, together with Zogenix, a project directed to provide information, training and contribute to empowerment of patients suffering from Dravet Syndrome and their caregivers

//It has been a pleasure to coordinate, together with Zogenix, a project directed to provide information, training and contribute to empowerment of patients suffering from Dravet Syndrome and their caregivers

It has been a pleasure to coordinate, together with Zogenix, a project directed to provide information, training and contribute to empowerment of patients suffering from Dravet Syndrome and their caregivers

Ha sido un placer coordinar, junto con Zogenix, un proyecto dirigido a contribuir a la información, formación y empoderamiento de pacientes, en este caso a las familias afectadas por el Síndrome de Dravet, cuyos resultados han sido debatidos en un encuentro reciente moderado por Diariofarma. No nos cansamos de investigar y aprender de los pacientes sobre lo que realmente representan las patologías para los que las padecen y de que nos hagan conscientes del verdadero alcance de las mismas.

It has been a pleasure to coordinate, together with Zogenix, a project directed to provide information, training and contribute to empowerment of patients suffering from Dravet Syndrome and their caregivers, the results of which have been debated in a recent meeting moderated by Diariofarma. We never tire from investigating and learning from patients about the burden their disease truly and fully represents for them.

https://www.diariofarma.com/2020/12/20/sindrome-de-dravet-las-asociaciones-piden-avances-en-los-ambitos-del-diagnostico-terapeutica-y-social

#Spain #dravet # dravetsyndrome #sindromedravet #raredisease #patients #diseaseburden

2024-04-02T10:39:16+00:00December 21st, 2020|News & Events|